/Docs/G/GA4GH/Accountability-Policy/Form/0.md
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Consent Policy
  • The consent process, in any form it takes, should be properly documented.
  • Consent materials and data sharing plans should be available for inspection and discussion with interested parties.
  • Consent materials and data sharing plans should be updated and made available in response to new regulations and policies by responsible individuals within an organization or entity.
  • Procedures should be in place to receive and respond to complaints or inquiries about policies and practices relating to consent to the sharing of genomic and health-related data. The procedures should be easily accessible and simple to use.