G/GA4GH/Data-Privacy-and-Security/Form/0.md

/Docs/G/GA4GH/Data-Privacy-and-Security/Form/0.md
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Preamble

This document is the Global Alliance for Genomics and Health’s (GA4GH’s) Data Privacy and Security Policy. It applies to data sharing in the context of both clinical practice and health research involving humans. This policy builds on the mission of the GA4GH and provides greater detail to the GA4GH Framework for Responsible Sharing of Genomic and Health-Related Data (the “Framework”).
Compliance with this policy facilitates the processing of data in a way that promotes and protects privacy and security in a proportionate manner. It also facilitates compliance with the obligations and norms set by international and national laws (including tribal, indigenous, and aboriginal laws), regulations, policies, and interoperable standards. Guidance covering specific aspects such as withdrawal of consent for processing data, benefit sharing, and return of individual results are outside the scope of this policy.